Team Tommy Foundation

My husband Tommy was diagnosed with Dermatomyositis in June of 2012 after only one month of symptoms. His disease turned into Intersticial Lung Disease and he was admitted to a local hospital on June 18th. Within a week he was transferred to a research hospital in Florida and passed away on July 23, 2012.

In August of 2012, his sister Laurie and I created a 501(c)3 called the Team Tommy Foundation to raise funds for families battling myositis diseases, finance research, and promote awareness ( Since then we have held various fundraisers such as a Quarters Auction and Pub Crawl. Since The Myositis Association is celebrating 20 years we have created a slew of events for September around National Myositis Day including a Health Fair on September 7th in which we will be having a 'Miles for a Myositis Mission' exercising event, a Kickball Tournament on 9/21, and our Board of Directors will be personally delivering letters and brochures to rheumatologists, general practitioners, dermatologists and pediatricians in our area.

Since our induction just one year ago we have been able to financially assist a family in NJ living with Juvenile Dermatomyositis, a family in California living with Dermatomyositis, sponsor 3 patients to attend this year's Myositis Conference in Kentucky, and donate money to research of Dermatomyositis through TMA! We are so proud of what we have accomplished in such a short amount of time. Most of all, we have raised awareness within community.

Please visit our website for more information. We are thankful to have a venue to share our story and hear what others are going through in thier own personal battles. God bless you all!

What a wonderful testament to Tommy. You're doing great work here! Please feel free to promote your cause and site here. you can find more information about us at :)

Thank you Scott! Ben emailed us a couple days ago after coming across an article about our kickball tournament on 9/21. We are excited to have found and become a part of this group!

ah ha! that's great. welcome again.

Thank you for joining the site and for sharing Tommy's story with us. Hopefully together we can help each other find new ways to bring awareness to Myositis to bring on better treatment, support and diagnosis.


Better treatment and a cure will hopefully be the outcome!!