Treatment

General
,
1

What form of treatment are any of you receiving for your polymyositis? I was put on immuran, since I can't take plaquinil, and prednisone, which I took myself off of due to eye problems. I am also on pain medication. I suffer with arthritis and fibromyalgia along with spinal stenosis. How about you?

2

I can't answer for polymyositis, but for dermatomyositis I was put on methotrexate and prednisone then imuran later. Now I'm done with Prednisone and doing Rituxan through IV treatments, seems to help. Oh and pain meds, of course. They say you don't have pain with DM, but some of us would beg to differ. With your arthritis, fibro and spinal stenosis, I can only imagine how painful it all is.

3

Nichole,

My Rheum suggested I get clearance with an eye specialist for Plaquinil for Sjogren's Syndrome, please tell me why you were not able to take it, please? He said no more biologics drugs because of the constant infections, so they are all off the table.

Thanks,

SK

4

BTW, I also have arthritis, stenosis and fibro! Let's not forget we both have Raynaud's! I'll tell you, I have so much, I forget half of it half of the time!

5

Interesting you mention that…my rashes started flaring up a couple of months ago and the doc mentioned Planquinil in passing but never followed through.

But the rashes have subsided since.

Oh and on the record for my disability hearing I noticed he stated my raynauds is “minor”. Sure doesn’t feel minor when I can’t even stay in the fruit market for more than ten minutes without my fingers turning blue.



SK said:

Nichole,

My Rheum suggested I get clearance with an eye specialist for Plaquinil for Sjogren's Syndrome, please tell me why you were not able to take it, please? He said no more biologics drugs because of the constant infections, so they are all off the table.

Thanks,

SK

6

So it appears polymyositis is a secondary disease to all this mess, sigh. I'm sorry for all your problems. Seems we just keep getting more and more stuff :( that they can't figure out but can put a name to. My internal med doc wants me back in to a rheumy but I just can't afford to go, not on no $720 a month. I already have 3 docs a month as is and gas isn't getting any cheaper. What to do!? I'lll figure out something.