Feeling tired and sick, and of course sick and tired, but I am off to infusion today so I am hoping I will see some real results soon. This will be my third transfusion and so far I am not sure if it is working yet. Had meningitis after the first one and then after the second a few complications but then just the usual sick after. So far the benefits do not outweigh the risks and I just need something to work! I feel like taking care of this disease is my full time job, though I am too sick to have a full time job. Now to try and get the 2 and 5 year old out the door so I can get to infusion on time. Some days would be hard for a normal mom, but when you add all of my health stuff it is just way too overwhelming.
Life is under no obligation to give us what we expect.