I'm new here and put this in the Blog section, was told it is better in this section, so here it is....
About 1 year ago my legs got real weak and couldn't write my name because of numbness in arms and hands. Diagnosis was CIDP. 5 days of IVIG and 4 weeks in rehab and returned home--very rapid improvement in arms and hands (back about 98%) more slowly in legs, maybe 75%. No further treatment. Only symptom was tired legs but could still do 50-100 stairs a day. Havent fallen down once in a year. Couple of months ago went to another neurologist just to have a follow up. He said I didnt look like his other CIDP patients so did some tests and blood work and ordered a muscle biopsy which came back (2 weeks ago) with IBM diagnosis (haven't had a chance to meet with him since the diagnosis report was given to me). I feel fine except the tired legs (not really pain, just tired). Don't know what the future holds, still walking , climbing stairs, getting out of chairs. I am 76
QUESTION:: looking on the internet I have a hard time telling what is the difference between IBM and PM--mostly they seem to sort it depending on whether you respond to steroids--is this correct?
Many thanks to the people who have already responded to the blog